Messages - Page 6 |
Want to send a message to Jack's family? Email them at jacksbattle@gmail.com.
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"I met you for the first time this summer! Your little hands turning the key to open up the Jazzercise door,
your mom looking on proud and allowing you to do what you knew you could!
I knew this memory would keep flashing over and over in my mind. I think of that beautiful face and it makes me smile and a little sad. Jack, remind me of a story in the bible it's about salt and light. If a seasoning has no flavor, it has no value. You are affecting those around you in a positive way, you are just like a seasoning bringing out the best
flavor in food. You are a beacon of truth and your light can be seen for miles Jack. I am so touched by the faith here in our Jazzercise community. We are all praying for you each day, and at our home we end our evening prayer with your name each night. I'm so glad I was touched by your light Jack! Your mom is a beautiful person and I am very
touched by your website, thanks for sharing your intimate lives with us. "
~ Amy Dunn - 11.27.2007
"Hello Jack. You are quite a cute young man. I am sorry to hear you are ill. My thoughts and prayers are with you and your family. My dad is real sick at this time too. I am wishing you the best Holiday Season you can have. Hugs from Pennsylvania."
~ Mary Mahey - 11.26.2007
"Jack, Megan, Craig & Robynn, We love you, and we are praying for you every day."
~ Tara, Austin, and Jeremy Trigilio - 11.26.2007
"Hello Jack, I want you to know how much we all miss you at Jazzercise. You get better soon, so you can come dance with us again. You are such a Great and very cute Dancer! Our prayers and thoughts are with you and your family, there is not a day that goes by that we don't think of you and hope for your full recovery. God Bless you All."
~ Mary DiMarco and Family - 11.26.2007
"To Jack's parents...
My prayers go out to you...I received an email from my
sister-in-law in Erie, Maureen Bishop, about Jack and
a link to your website. I live in Bay Village, OH near
Cleveland, one suburb east of Avon Lake where 2 little
girls were victims this year of a type of brain tumor
called diffuse pontine glioma. The one girl was a
student at the school I work at, and I know her
family. Her parents formed a foundation to raise money
for research efforts and also to help families find
information through their website on the most
up-to-date advancements in treatment of childhood
brain gliomas. Their foundation website is
www.prayersfrommaria.org. Here is their "mission
statement" quoted from their website...
The Prayers from Maria Foundation was established to
fight a specific form of childhood cancer - brain
tumors commonly referred to as "gliomas". Incidents of
gliomas are becoming more and more frequent, and claim
the lives of hundreds of children per year in the
United States. Our mission is to find a cure for this
tragic family of diseases, while also providing
information and assistance to families with children
who suffer from gliomas.'
I am sure if you contact them, they may be able to
help you. I know they were at Cleveland Clinic in the
beginning, but eventually took Maria to St. Jude's
Children's Research Hospital and had
nothing but praise for that place. They said it was so
different than the other hospitals ...everything was
geared to children and they were so impressed with the
staff and how they dealt with Maria and the rest of
the family to try to help them through. If cost is an
issue, St. Jude's doesn't turn anyone away. Also,
there are very excellent doctors and researchers on
the board of the Prayers for Maria foundation, so I am
sure they are "up" on the latest treatments. Please
check out their website and if you would like to talk
to Maria's parents, I could put you in touch. I was
again in tears reading your story, but so many people
are trying to find the treatment...I know Maria did
much better than expected initially and able to have a
"normal" existence for a time with the tumor shrinking
very, very small, but unfortunately not disappearing.
As it shrunk, she seemed to bounce back and could
enjoy a vacation and time playing with friends. I
guess it makes you appreciate each day to a fuller
extent. I just think someone is going to come up with
the treatment that cures it...I wouldn't give
up...keep praying and leaving no stone unturned!"
~ Julie Holland - 11.25.2007
"Hi all, I am very sad to read your case at your website. My brother Miguel is 33. He was diagnosed Astrocytoma 2 ˝ years ago. 1 year ago he was diagnosed Glioblastoma, very aggressive Glioblastoma. After months of tough fighting he is currently, apparently in an excellent health status. The tumour stopped thanks to a treatment based on Irinotecan and Avastin. He works and lives 99% normally. I really wish you all the best and send you many hugs and kisses across the Atlantic Ocean, especially to Jack."
~ Francisco Hernández Marcos, Madrid Spain - 11.25.2007
"Hello to Jack and Megan and the entire Sundberg family. You are all in our thoughts and prayers."
~ Ronda Nicholes and family and your fellow jazzerciser's in Albion (Dave, Tish, Kameron, and Garrett) - 11.24.2007
"Jack, You are in our thoughts and prayers each day. We are praying for your miracle."
~ The Bartlett family (Dave, Tish, Kameron, and Garrett) - 11.24.2007
"Jack, I can not get you out of my head. I pray every
day that God not only heals you Jack, but also brings
your family closer together and closer to God. Take
all that energy that we all know you have and put it
into your fight. Miracles do happen! You have to
believe. You have so many people praying for you!
Megan and Craig, this has really put life into
perspective for me. It has shown me to take more time
out for the people that I care about and not to take
for granted anything! I am so sorry for the heart ache
you are all living with. Big hugs from the Ghamo's!"
~ Stephanie and the Ghamo Family - 11.23.2007
"Hello Sundbergs,
Happy Thanksgiving. Brian Grimm here, I'm so sorry to hear of Jack's diagnosis, I myself was diagnosed with GBM in January of this year. I have been tremendously blessed in that my tumor is shrinking and I'm feeling better than I've felt in many years. Initially I simply followed whatever my doctors said (my doctors are the nation's "experts" at UCSF), but my tumor continued to grow. It wasn't until I did my own research and followed my own plan that I began to improve.
Among other things I've been seeing a world-class nutritionist (Dr. Jeanne Wallace) specializing in brain cancer, and following a treatment protocol from conventional medicine in India (the Banerji protocol). I've been told by my doctors here that the long-term survival rate for GBM is 1%, what I wasn't told is that this is not consistant from country to country. For example, in India, specifically Calcutta, the long-term survival rate is approaching 50%.
Here's a few links to more information on the banerji protocol, please research this for yourself, it's been a life saver for me. I spend about $20/mo on the treatment, which gives me about 50% odds, versus the chemo & radiation I spent around $130k on, and gave me 1% odds. The treatment has been reviewed and approved of by M.D. Anderson cancer center in Houston, TX, and has been reviewed and published in the international journal of oncology.
A google search for "Dr. Banerji" "Banerji Protocolj", and "Ruta 6" will also turn up many more links and information.
I would be happy to chat or try to answer any questions you might have to the best of my ability. I also blog about health, health care, food, and my experiences on my website, Freshtopia.net. There are reasons to have hope, the mind is a powerful tool. I wish your family all the best, and will keep Jack in my prayers. Much love and understanding."
~ Brian Grimm - 11.23.2007
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